In honor of National Cystic Fibrosis Awareness Month, people all across the country will spread awareness about the disease and encourage others to support the mission to find a cure this May.
Approximately 30,000 Americans have cystic fibrosis, a life-threatening genetic disease that affects the lungs and pancreas, and more than 10 million Americans are symptomless carriers of the defective CF gene.
“We have made real progress in the search for a cure, but we still lose precious lives to this disease every day,” said CF Foundation president and CEO, Robert J. Beall, Ph.D. “That’s why it’s so important for everyone who cares to step forward and join us in the fight against CF this month – and all year round.”
The Cystic Fibrosis Foundation is the world’s leader in the search for a cure, and funds more CF research than any other organization. Virtually every CF drug available today was made possible because of the Foundation’s support and its ongoing work with researchers and the pharmaceutical industry to find a cure.
Cystic fibrosis is a life-threatening genetic disease that primarily affects the lungs and digestive system. About 1,000 new cases of cystic fibrosis are diagnosed in the U.S. each year. In people with CF, a defective gene and its protein product cause the body to produce unusually thick, sticky mucus that:
In the 1950s, few children with CF lived to attend elementary school. Since then, tremendous progress in understanding and treating CF has led to dramatic improvements in the length and quality of life for those with CF. Many people with the disease can now expect to live into their 30s, 40s and beyond.
People with CF can have a variety of symptoms, including:
Currently, there is no cure for cystic fibrosis. However, specialized medical care, aggressive drug treatments and therapies, along with proper nutrition, can significantly lengthen and improve the quality of life for those with cystic fibrosis.
If you have cystic fibrosis, you should wear a medical ID at all times. Symptoms of CF can easily be misdiagnosed. Prompt diagnosis is critical to effective treatment.
People with cystic fibrosis can suffer a variety of complications, such as chronic respiratory failure, diabetes, intestinal obstructions, rectal prolapses, diabetes, gallstones, pancreatitis, malnutrition, sinusitis, pneumonia, and many more. Also, those with cystic fibrosis likely take many medications, which emergency personnel need to be aware of. If you need medical attention and are unable to speak for yourself in an emergency, a medical ID will alert the emergency medical personnel to your condition.
Some hospitals recommend a necklace rather than bracelet because most of the time quick trips to the emergency room for those with cystic fibrosis are lung related and xrays will need to be taken. A medical ID necklace would be noticed as it has to be removed for xrays.
Source: Cystic Fibrosis Foundation