Marfan syndrome can be hard to identify and individuals living with this condition may exhibit different combinations of features, some of which require special tests to detect and can be fatal.
According to The Marfan Foundation, knowing the signs of Marfan syndrome can save lives. Wearing a medical ID for Marfan syndrome can raise awareness of the life-threatening aspects of this condition and help affected individuals to live life with peace of mind.
Always wearing a medical alert bracelet or necklace for Marfan syndrome and related disorders can:
Unique medical information that can include current medications
Emergency contact name
Emergency contact number
“I wear my medical alert bracelet much like I wear a seatbelt. I don't expect to ever need it but, because of my extremely complicated medical history, I want first responders to have as much information as quickly as possible in an emergency situation. Like a seatbelt, I put it on automatically in the morning and I feel really odd if I forget to wear it.” – Jay Elliott, of St. Louis, who has Marfan syndrome